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Protect sexual health clinics

We need to protect sexual health clinics and services

Sign the petition  to maintain the sexual health services. Since the government REMOVED sexual health from the NHS and asked local councils to provide it, the standard of services (access times, staffing, etc) has gone down.

You need to show that members of the public do want the provision of anonymous, easily accessible sexual health clinics. Sign now!

And if you want action for your own sexual health clinic, write to your local councillor. No one does! You can say your children/nephews, etc., need the service. They don’t care who is using it, just that it needs support. Afterall, chlamydia is the most common cause of acquired infertility! That’s serious. There are 29 other things that look like herpes. So just because a person thinks they have it, until it is swabbed by a sexual health service, you cannot tell. We probably need a protest to protect sexual health clinics!

sexual health clinic sign
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‘Talking to a New Partner’ – Come to an Event That Will Give You Confidence (and Information)

We run these days to help you develop confidence, information, skills to talk to a new partner – and to meet others in the same boat.

Nine people attended recently. They marked their score cards with the top rating: a ‘very helpful’ day and several commented that it was even more enjoyable than they had expected. “Meeting the others on the course is a bonus,” said one lady.  “In fact I have made two new friends and we support each other and meet up.”  These days happen every three months. You can see the date for the next one on the Support Groups page of the website.
Continue reading ‘Talking to a New Partner’ – Come to an Event That Will Give You Confidence (and Information)

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No “Link between herpes in pregnancy and autism”

You may have read some headlines in the Sun or the Mail, etc. They report “‘Women infected with herpes while they are pregnant are twice as likely to have a child with autism.” This headline comes from a study looking at whether maternal infections during pregnancy are associated with the risk of neurological developmental disorders such as autism spectrum disorders (ASDs).
Continue reading No “Link between herpes in pregnancy and autism”

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Dates for the diary

“Dates for the diary” now has its own events page

Events are now on their own website page – with dates

We organise a support groups/social get-togethers – mostly in London. The hosts for these events are people with herpes.  You can meet others with the virus, share experiences…

Sphere sign
Sphere sign

We hold informal, interactive days when you can learn how to talk to a new partner.  These are on the first Saturday of them month – and they are extremely popular. The usual  comment from people who attend is always something like: “I wish I had gone to one of these sooner…”

And a formal seminar – once a year – with a doctor who is expert in genital herpes.  We always ask the doctor to be sure to allow time for answering all your questions. Next one is on May 12th, 2018.

Since COVID, we have added lots of Zoom events too. Several every month.

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When the media gets it wrong!

Daily Mail confuses different herpes viruses

Do you know the difference between genital herpes (caused by herpes simplex types 1 or 2) and glandular fever (caused humanherpes virus 4 i.e. Epstein Barr virus)? Of course you do, but the Daily Mail doesn’t! On 20th July 2016, health writer Mia De Graaf confused these viruses and also Kaposi’s sarcoma virus (humanherpes virus 8). Herpes simplex is not, ever involved in cancer-causing activities, HHV 4 and 8 are. Simples!
Continue reading When the media gets it wrong!

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Are you reading everything on this site?

By reading everything on this site, you will be reassured and educated. The information on this site is written to the high standards required by The Information Standard.  This means that all medical statements about genital herpes are referenced – often from the guidelines written by doctors who are specialists in genital herpes.
Continue reading Are you reading everything on this site?

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Sun on Sunday – 29-4-2012: ‘I’ve had sex with eight men even though I know I’ve got herpes’

“Student, 19, puts lovers in peril” says the Sun on Sunday

By JENNIFER TIPPETT   Published: 29th April 2012

With comments on each point, by the Herpes Viruses Association, in red. We don’t expect the Sun to “play nice” but they are being really outrageous here! 

A RECKLESS teenager told by doctors that she had one of the worst cases of herpes they had ever seen has confessed to bedding EIGHT lovers since she was diagnosed.
But she told them all and used condoms and avoided sex after an outbreak.  This is far more than people who have had facial cold sores do – and genital herpes is a cold sore in a different place.

Astonishingly, misguided Marquita Church, 19, thinks it’s her right to sleep around without taking precautions.

The student said: “The majority of guys ask to NOT use a condom — so I don’t feel bad.  That is their choice after she has informed them.  If she has no symptoms they are taking a very low risk.

“Most don’t ask about my sexual history and if they do, they don’t care. It’s their responsibility as much as mine.  Correct.

“I love sex so I’ve slept with eight men since my diagnosis without protection.”

Again – that is their choice.  Nobody expects people who have had a facial cold sore to use ‘protection’ every time they kiss someone.

Scarily, she added: “It’s probably silly and reckless, but life is too short to give up things you love — and I love sex.”

Marquita, from Newquay, Cornwall, caught herpes from one of her many partners three years ago when she was just 16.

She still carries the virus and can pass it on through sex — especially if she is suffering a flare-up of symptoms at the time.  Except that she makes a point of saying that she is not having sex when she has flare-ups.

Marquita, who became sexually active at 14 and is on the Pill, told how doctors diagnosed a severe case of herpes when she was taken ill — just two months after being treated for chlamydia.

She woke one morning with a stinging red rash all over her genital area and legs. By the end of the day the entire area was covered in blisters.

She added: “Two days later I had a sky-high temperature, I couldn’t wee and my bladder was swollen. I felt so unwell.”

Marquita’s worried parents took her to hospital, where a doctor recognised herpes — and said the sores had become infected.

The teenager recalled: “He told me it was one of the worst cases he had ever seen. It had spread to my bladder, bowels, digestive tract and even my throat.

This is bad luck: a few people get bad primary symptoms and 80% get no symptoms or only very slight symptoms.

“He told me the herpes virus would be in my system for life and that I can pass it on to anyone I have sex with. He also said that I was most infectious when the symptoms show and for six weeks afterwards.”

This is incorrect.  The risk of transmission will be very low from about four days after skin heals following an outbreak.  Six weeks is quite wrong.  Saying that the virus is ‘incurable’ or life long’ is a scare tactic that dates back to the original antiviral drug marketing campaign in the 1980s.  Chickenpox, glandular fever and even thrush are also ‘incurable’ and ‘life long’ but nobody talks about them in this negative and prejudicial way.

When she was allowed home from hospital a few days later, her parents were silent.

She said: “They were clearly disappointed and I felt bad. I couldn’t imagine ever having sex again. I felt cheap and dirty.”

That didn’t last long.

Three months later Marquita — who says she is allergic to ordinary latex condoms — was back having unprotected sex.

She said: “I got my libido back and managed to get with my conquest at a party. The non-latex condoms are just too expensive so I didn’t bother being careful. At the crucial moment, I asked him whether he minded not using one and he said no.

“That was when I realised most guys don’t care and I slipped back into my old habits.”

Again, this is their informed choice and they are running a very low risk.  The risk for them would be higher if they had sex with an undiagnosed partner with minor symptoms – and there are far more of them.  Marquita is being responsible. 

Marquita’s symptoms have flared up a few times and she says she then avoids sex for six weeks.  See above – this is longer than necessary.

But she revealed: “Since being diagnosed, I have slept with eight men and nobody has ever come back and said I’ve given it to them. I have always given the men the opportunity to say no.  So what is the problem?

“For most guys, it seems that sex with me is worth the risk.”

Marquita, who says she has had 25 sexual partners, is dismissive of the problems herpes could cause if she gets pregnant.

There is an increased risk of miscarriage — and if she has a flare-up at the time of birth she would need a Caesarean to avoid a risk of the baby going blind.

This is incorrect.  There is no increased risk of miscarriage for women who catch the infection during pregnancy [recent statement by the Royal College of Obstetrics and Gynaecology].  A Caesarean is only routine when the mother has been newly infected at term.  Most women with genital herpes give birth naturally even if there are symptoms at the time of birth because the baby is protected by antibodies that are passed from the mother while the foetus is still in the womb.  

 She said: “I don’t worry about that yet. If it turns out I can’t have kids, I’ll deal with it. There are other options — surrogate mums, fostering, adopting. I am not going to stress about it yet.”

Marquita now has a boyfriend who she has been seeing for three months. She claimed: “It doesn’t bother him — but we practise safe sex to protect him.”

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Why aspirin may help to prevent recurrences

From SPHERE 19/3, December 2004  – “Why aspirin may help to prevent recurrences” you can download a PDF here.

An old tip is validated

One of the tips that the Herpes Viruses Association has long recommended to prevent recurrences is to take a low dose of aspirin daily. This was originally suggested to the HVA by Dr John Oates, who advised us in the early days of the charity – and wrote a book about herpes simplex (now out of print). His explanation for its use was that aspirin lowers the prostaglandins that cause inflammation and should reduce the severity of symptoms. Many members over the years have found this advice helpful.

We often suggest that taking half an aspirin a day for a couple of weeks before a holiday or honeymoon may be worth trying.

Two members have reported that after being prescribed low daily dose of aspirin for a different
medical problem, all their herpes simplex recurrences have stopped.

New inflammation hypothesis

Now an Open University student has provided further evidence to support the aspirin idea. Project manager Gary Smith has been studying the phenomena of inflammation and has questioned received wisdom on the reason for it. Up to now, most doctors and scientists have believed that when an infection starts to attack the body, inflammation is part of the immune response’s attempt to contain the infection. Gary’s theory is quite different. “The inflammation is not the body trying to fight the infection, it is actually the virus or bacteria deliberately causing inflammation in order to hide from the immune system,” he said.

Next time try aspirin

This means that inflammation is unhelpful and our immune systems work better without it. The theory is attracting attention from medical researchers worldwide. Which brings us back to our long-standing advice about aspirin. This old and popular drug is renowned for its ability to reduce inflammation. So next time you have a recurrence, or think you are about to have one, be sure to take a regular dose of aspirin. It should reduce inflammation so that your immune system has an easier time clearing up the infection.

Notes:
Consult a doctor before taking any over-the-counter medication long-term.  Aspirin should not be given to children under 16 because there is a low risk it can cause Reye’s syndrome.  Adults should be cautious about taking aspirin if they have stomach problems.