Autumn 2017 edition of Sphere
- New this time – read more on a potential vaccine and how the US government FDA makes research more difficult.
- News from the Finnish conference attended by Marian Nicholson. Dr Raj Patel gave updates on the European herpes simplex guidelines on treatment, pregnancy, disclosure and a lot more. See how to take Valtrex for best effect!
- One Norwegian doctor said, “We got rid of the stigma”. A French doctor reported on how STIs are no longer stigmatised (in France!)
- Men with pain – you are not alone.
- Doctors’ debate: Telling partners – or not? You can read Marian’s debate report to see who won.
- Sarah has written about the insanity of the stigma.
- Helpline stories – and a personal story (a favourite article in every magazine!).
Continue reading What You Get in the Current Magazine
A potential vaccine?
We have been following the development of Theravax from Rational Vaccines. This is the work of Dr Bill Halford’s team. (I recently spoke to their business manager on the phone.) This is an interesting vaccine, because it is different from the others currently being worked on and it is more like the successful chickenpox vaccine.
This vaccine was being given in St Kitts, in the Caribbean, on a “named patient basis”.
The results of the first trial involving 17 people has gone public. Already the Daily Express has hailed ‘cure on the horizon’. However this is only a phase 1 trial, so there is a long way to go yet! (Phase II and phase III before it can be sold – at least 4 years, If all goes well.) And remember there was the GSK vaccine that failed at phase III.
He says: “This early-phase trial revealed TheravaxHSV-2 elicited stunning reductions in herpes symptoms among trial participants. Specifically, 17 of 17 participants who received the 3-shot vaccination series indicated the live TheravaxHSV-2 vaccine was more effective in reducing their genital herpes symptoms than antiviral drugs. On average, participants reported a 3.2 fold reduction in their number of herpes-symptomatic days per month” compared to taking antiviral drugs.”
We wait and see…
Marian Nicholson updated 17 October 2017
We run these days to help you develop confidence, information, skills – and to meet others in the same boat.
Nine people attended recently. They marked their score cards with the top rating: a ‘very helpful’ day and several commented that it was even more enjoyable than they had expected. “Meeting the others on the course is a bonus,” said one lady. “In fact I have made two new friends and we support each other and meet up.” They are every three months.
Continue reading ‘Talking to a New Partner’ – Come to an Event That Will Give You Confidence (and Information)
You may have read some headlines in the Sun or the Mail, etc., which report “‘Women infected with herpes while they are pregnant are twice as likely to have a child with autism.” This headline is prompted by a study looking at whether maternal infections during pregnancy are associated with the risk of neurological developmental disorders such as autism spectrum disorders (ASDs).
However, these scare stories refer to one small area of the findings. In fact, the report was not able to confirm the association between maternal infections and autism in children. The suggestion that herpes simplex infection is a risk factor for autism was based on just 14 women, so it not reliable.
Continue reading No “Link between herpes in pregnancy and autism”
We organise a support groups/social get-togethers – mostly in London. The hosts for these events are people with herpes. You can meet others with the virus, share experiences…
We hold informal, interactive days when you can learn how to talk to a new partner. These events – next one on Saturday, 17 February, 2018 – are extremely popular with people commenting afterwards “I wish I had gone to one of these sooner…”
And a formal seminar – once a year – with a doctor who is expert in genital herpes. We always ask the doctor to be sure to allow time for answering all your questions.
We need a volunteer (or more than one) to come into the office to do the routine tasks of administration. (We had a great guy, but we found him a full-time paid job in this building, so we need ‘you’!)
The two of us cannot manage on our own but we cannot afford to employ a third person. You could come in on certain days of the week, or for part of a day, or in even the evening (we’re here till at least 8 pm). We will show you exactly how to do the tasks, but obviously it would help if you have some word processing or Excel experience. We are conveniently just round the corner from Caledonian Road tube station (Piccadilly line) and your fares can be paid. Talk to us about what you might be able to do: 020 7607 9661 – or email [email protected].
Continue reading Volunteering
Just below, you can read about the muddle the Daily Mail made of a story.
Continue reading IPSO no better than PCO
The journalist saw the scientific story about cancer and herpes – she assumed this was herpes simplex (genital herpes). She was wrong.
Continue reading Cancer? No! Muddled Daily Mail Story Untangled
There are several websites where you can buy aciclovir or Valtrex. Check that they are UK-based and have the approval of the Health Commission. This will ensure that you are buying genuine antiviral tablets. These websites have a series of questions that you need to answer satisfactorily before they can issue the ‘e-prescription’ and sell you the treatment.
Continue reading Buying Antiviral Tablets Online