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What You Get in the Current Magazine

Summer 2017 edition of Sphere

  • Currently there are many vaccines being worked on – Nigel Scott attended the BASHH doctors’ conference in Belfast and bring back reports the ones that have reached the stage of being tested on people.  We give more detail on two of these vaccines which are currently being looked at as vaccines to treat genital herpes.  But we warn readers that none of these herpes vaccines has reached the phase 3 stage.  Only then can we start to hope that a it might reach patients (or their partners).
  • He also reports on topics from the conference such as thrush, sex ed. in schools and older people having sex!
  • Marian Nicholson reports from the House of Lords where BASHH held the 100th birthday celebration of the creation of sexual health clinics
  • And she was in Malta for the European pain conference dealing with the Societal Impact of Pain, where she was involved as the UK rep from Pain UK. (This comes from our shingles work.)
  • “How to seduce with confidence” and “how to deal with worry” are two articles that aim to help you to sort out your own head…
  • You can read comments from people who attended one of our “Moving On Days” – half the members who attended the the event in May are now in a relationship.
  • And we always print a personal story – in every magazine.

Continue reading What You Get in the Current Magazine

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Potential vaccine?

A potential vaccine?

We have been following the development of Theravax from Rational Vaccines.  This is the work of Dr Bill Halford’s team.  (I recently spoke to their business manager on the phone.)  This is an interesting vaccine, because it is different from the others currently being worked on and it is more like the successful chickenpox vaccine.
This vaccine is available in St Kitts, in the Caribbean, on a “named patient basis”.  (Check with info@herpes.org.uk for more details of the doctors involved.)
The results of the first trial involving 17 people has gone public.  Already the Daily Express has hailed ‘cure on the horizon’. However this is only a phase 1 trial, so there is a long way to go yet! (Phase II and phase III before it can be sold – at least 4 years, IF all goes well.) And remember there was the GSK vaccine that failed at phase III.
He says: “This early-phase trial revealed TheravaxHSV-2 elicited stunning reductions in herpes symptoms among trial participants. Specifically, 17 of 17 participants who received the 3-shot vaccination series indicated the live TheravaxHSV-2 vaccine was more effective in reducing their genital herpes symptoms than antiviral drugs. On average, participants reported a 3.2 fold reduction in their number of herpes-symptomatic days per month” compared to taking antiviral drugs.”
We wait and see…
Marian Nicholson updated 17 August 2017

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Are you interested in taking part in research?

  1. Herbal treatment.

    Volunteer to test new herbal treatment to stop your outbreaks.  It contains about eight different herbal ingredients including witch hazel, oak gall and fenugreek… Sample sent to you for £3 (for p&p – cheaper than buying it!).  Email us with the number of outbreaks a year you get.

  2. Take part research that will contribute to finding out why we get outbreaks.

    WELL ACTUALLY, it is research into finding out why we have shingles outbreaks. But as you will know if you have read the page about all the herpes family, “humanherpes virus 3” causes chickenpox/shingles  – and this virus works in much the same way as humanherpes viruses 1 and 2 (that’s the two types of herpes simplex). Dr Neil Patel is asking for you to volunteer to come and give him a drop of blood. He is at UCL hospital, central London. Email if you are interested.

    Marian gave Dr Patel some of her blood  … and has blogged about it (see page).

  3. If you are in Gtr Manchester area:

    A PHD student at the University of Manchester is investigating the neural mechanisms underlying chronic widespread pain using neuro-imaging techniques.

    She needs to find people to take part in this trial in Manchester.  The study involves 2 visits to Salford Royal hospital, for a 30 minute MRI scan and an EEG study.  She is reimbursing for time and minimal travel costs. She is looking for anyone who has experienced pain in the last month lasting more than 24 hours, including Fibromyalgia, as well as healthy pain free participants.

    You can see contact details on her advert:  https://m.facebook.com/Study-looking-at-brain-activity-during-Pain-860388327435920/?ref=page_internal&mt_nav=1

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No “Link between herpes in pregnancy and autism”

You may have read some headlines in the Sun or the Mail, etc., which report “‘Women infected with herpes while they are pregnant are twice as likely to have a child with autism.” This headline is prompted by a study looking at whether maternal infections during pregnancy are associated with the risk of neurological developmental disorders such as autism spectrum disorders (ASDs).

However, these scare stories refer to one small area of the findings. In fact, the report was not able to confirm the association between maternal infections and autism in children. The suggestion that herpes simplex infection is a risk factor for autism was based on just 14 women, so it not reliable.
Continue reading No “Link between herpes in pregnancy and autism”

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Dates for the diary

“Dates for the diary” now has its own tab – go to https://herpes.org.uk/events.

We organise a support groups/social get-togethers – mostly in London.  Email for details of one in Reading  on Sun. 22 January, Scarborough Thurs. 16 February.  The hosts for these events are people with herpes.  You can meet others with the virus, share experiences…

We hold informal, interactive days when you can learn how to talk to a new partner.  These events – Saturday, 18 February – are extremely popular with people commenting afterwards “I wish I had gone to one of these sooner…”

And a formal seminar – 25 February, Saturday pm – with a doctor who is expert in genital herpes.  We always ask the doctor to be sure to allow time for answering all your questions.

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Volunteering

Office Work

We need a volunteer (or more than one) to come into the office to do the routine tasks of administration. (We had a great guy, but we found him a full-time paid job in this building, so we need ‘you’!)

The two of us cannot manage on our own but we cannot afford to employ a third person. You could come in on certain days of the week, or for part of a day, or in even the evening (we’re here till at least 8 pm). We will show you exactly how to do the tasks, but obviously it would help if you have some word processing or Excel experience. We are conveniently just round the corner from Caledonian Road tube station (Piccadilly line) and your fares can be paid. Talk to us about what you might be able to do: 020 7607 9661 – or email info@hva.org.uk.
Continue reading Volunteering

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‘Talking to a New Partner’ – Come to an Event That Will Give You Confidence (and Information)

We run these days to help you develop confidence, information, skills – and to meet others in the same boat.

Nine people attended recently. They marked their score cards with the top rating: a ‘very helpful’ day and several commented that it was even more enjoyable than they had expected. “Meeting the others on the course is a bonus,” said one lady.  “In fact I have made two new friends and we support each other and meet up.”
Continue reading ‘Talking to a New Partner’ – Come to an Event That Will Give You Confidence (and Information)

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Buying Antiviral Tablets Online

There are several websites where you can buy aciclovir or Valtrex.  Check that they are UK-based and have the approval of the Health Commission. This will ensure that you are buying genuine antiviral tablets. These websites have a series of questions that you need to answer satisfactorily before they can issue the ‘e-prescription’ and sell you the treatment.
Continue reading Buying Antiviral Tablets Online