About us

What we do – we are doing it during COVID-19 pandemic too…

The Herpes Viruses Association, registered charity 291657, helps to improve life for people with herpes simplex by:

  • helping them to understand the condition and put it into its proper perspective as a common skin complaint.
  • providing leaflets on the most common herpes questions such as ‘How to protect my partner‘, ‘Talking to a new partner‘ and ‘Pregnancy and childbirth‘. Members can choose from 12 leaflets.
  • publishing a quarterly journal SPHERE. This covers everything from research news to articles on stress management and our social events. See list of back articles.
  • running trials to find out the usefulness of complementary treatments.
  • publishing the results from our questionnaires about the experience of living with herpes simplex.
  • supporting and encouraging local groups and meetings.
  • training and supporting the volunteer helpliners.

    Video: Marian explains what we do

On a wider front the Herpes Viruses Association is also concerned with:

  • providing information and advice to those who have symptoms of herpes simplex, the public and the medical profession.
  • encouraging a calmer, less hysterical approach to what is usually a minor skin condition.
  • correcting misleading coverage of herpes simplex in the media.
  • promoting a more accurate public awareness of the condition;
  • working with other organisations to reduce the stigma surrounding all STIs and promote a more mature approach to sexual health.


  • answer the helpline / advice line.
  • organise local groups and social events – relaxed, informal get-togethers which have been attended by thousands of people over the years. Members who attend find them supportive, informative and enjoyable.
  • help us to improve our website and other services – we need more young people on our Executive Management Committee – and more BAME members, and more men! 

We need more people for these roles. As well, we’d love volunteers to fundraise and to help in the London office with admin tasks. (Both of these can be part-time.) Get in touch: [email protected]

Who writes the Herpes Viruses Association’s website

Staff at the Herpes Viruses Association (HVA) write this website – see our staff below. They monitor worldwide research into treatments and vaccines, infection rates, and studies on the value of complementary therapies. Since 1985, they have been providing evidence-based information for a condition that has been, and continues to be, comprehensively misrepresented by most other sources.

Health & care information you can trust. The Information Standard. Certified Member.In August 2011, the HVA received accreditation from the Information Standard. This is a ‘kite-mark’ system run by the NHS. Organisations which provide health information have to show that they have a carefully evaluated procedure. This ensures that they provide evidence-based and unbiased information. Also, the leaflet or web page must be pilot-tested on a group of readers to check that the language used can be easily understood. Finally, the finished leaflet or webpage must be validated by a suitably qualified doctor. You will see the Information Standard logo on various pages of this website.

The doctors of the “Special Interest Panel for Herpes Simplex Virus” of the British Association for Sexual Health and HIV support our work. We consult them on medical/clinical matters where necessary. The HVA is impartial and totally independent of all manufacturers of both drug treatments and complementary therapies.

We update the News page often, maybe once a month or so. And read our blog posts.

When was this website last updated?

We last updated this site on 31-05-2022.


You can send any compliments, complaints or suggestions to us: by email at [email protected] or by post to HVA, 41 North Road, London N7 9DP.

We have formal procedures for complaints in place and can send you these if required.

Annual Review 2021

Read the Annual Review of our activities, provided by our trustees, for the year ending 31 March 2021.

Our staff

Our office has two staff. Their payment follows the average for London wages.

Marian Nicholson

Photo of Marian Nicholson, director of Herpes Viruses Association

Marian Nicholson has appeared in magazines, on TV and has given radio interviews. She caught herpes simplex in 1981. Marian edits and co-writes the HVA’s quarterly journal, Sphere (see an archived copy) and all information for patients. She trains and supports our volunteers.

Marian represents the charity on the Herpes Simplex Virus Advisory Panel – a sub-group of the British Association for Sexual Health and HIV. This panel writes the herpes simplex guidelines for doctors.

Marian gives talks to staff at sexual health clinics around the country. All clinics can request a training session that includes the PowerPoint presentation, “Helping you to help your patients with herpes”. Send us an email.

She has been a guest on many TV and radio shows, talking about her personal experience and explaining the creation of the stigma that accompanies ‘cold sores on the genitals’.

See Marian’s story in an NHS Choices video

Nigel Scott

Phtoto of Nigel Scott, Information Officer of Herpes Viruses Association

Nigel Scott retired in July 2020 after over 22 years of continuous service.

Nigel’s contribution to our literature and lobbying power has been considerable and his reassuring advice to thousands of callers and visitors will not be forgotten. We are grateful that he will remain in contact if we need to call on him.

As our Information Officer, he represented the HVA at meetings of the All Party Parliamentary Group on Sexual and Reproductive Health and the All Party Parliamentary Group on Skin. In addition, he worked with other organisations that aim to improve sexual health services for patients.

Nigel will continue to give advice on potential legal cases involving herpes simplex transmission and liaises with patients, lawyers and other sexual health organisations when these arise. So, every potential case that the HVA has been involved with, has never gone to trial.

Alongside Marian Nicholson, he was responsible for creating and editing the HVA’s information resources online and on paper, including “Herpes Simplex – The Guide” as well as the charity’s quarterly journal. His article on the origins of the herpes stigma, written for Spiked online, has been widely cited across the internet.

He will continue to counsel members and callers to the helpline.

We will be adding information about Nigel’s replacement in due course.

How you can help/volunteering

We need your help to continue to offer this helpful website. Help us with a donation. (We rely totally on donations/subscriptions.)

One volunteer is Alice:
Alice is the hostess at some London meetings. She has had this for 6 years ago having got it when she was 37. She’s been in and out of the dating scene since then so have plenty of experience of talking to partners about this. She’s a very active and actually got into hiking through HVA in a way! (If you come, you can ask her to explain that.) Like all of our hosts and volunteers, she’s friendly and non-judgemental so feel free to come along and have a chat and ask questions.

We need volunteers also – answering helpline calls, hosting meetings, and helping part-time with office tasks, fundraising or social media programmes, and much more… Get in touch: [email protected]

We have seven patrons

Six of them are doctors who specialise in sexual health medicine:

  • Professor Michael W. Adler CBE MD FRCP FFCM
  • Dr David Barlow MA BM FRCP
  • Dr Brian A. Evans FRCP
  • Professor Colm O’Mahony MD FRCP BSc DIPVen.
  • Dr Raj Patel FRCP
  • Professor Simon Barton MD FRCOG FRCPEd FRCP

We have a ‘media doctor’ who kindly helps us get our message out to the public:

  • Dr Phil Hammond MB BChir MRCGP

The Executive Management Committee currently has nine members: all members of our Association. None has a professional or commercial interest in herpes simplex (i.e. no doctors or pharmaceutical company representatives).

How the Herpes Viruses Association got started

In 1981, people with herpes simplex got together to share information and to help each other as a response to the many scary stories about herpes simplex in the press. The Herpes Viruses Association became registered charity no. 291657 in 1985. We set up an office in the Omnibus Centre and we now employ two staff. About ten volunteers help us by hosting meetings, answering the helpline or assisting in the office. Over the years, we have dealt with over 100,000 enquiries from patients and health professionals.

In order that we can continue to offer our website (500,000 visitors a year), the long-standing helpline and information leaflets we rely on your donations and subscriptions.

If this website has helped you, then please subscribe or send us a donation by post (HVA, 41 North Rd, N7 9DP) or on line – just as you would to any cause that you thought does a good job. Thank you.

Contact us

[email protected] can give you short answers to any questions you have; or phone our helpline on 0845 123 2305. (Not a premium rate call. It counts as a local rate from a landline. Of course, mobile services may charge more).

HVA disclaimer and Information Standard policy

The Herpes Viruses Association website gives information about herpes viruses; especially herpes simplex (genital herpes) and shingles/post herpetic neuralgia. It does not replace a consultation with a doctor.

This information relies on the evidence and medical opinion available at the time this information was produced. We can be confident that the views expressed and facts provided will assist patients, medical professionals and journalists in increasing understanding and improving the treatment of these conditions. Other authorities may differ in their detailed advice on certain points.

Every effort has been made to ensure the information we provide is accurate. However, the Herpes Viruses Association cannot be held responsible for the site’s accuracy or for any actions taken on the basis of the information provided on the site or for any loss suffered due to reliance on that information. We cannot guarantee uninterrupted access to this website or the sites to which it links. We accept no responsibility for any damages arising from the loss of use of this information.

Information Standard disclaimer

The HVA shall hold responsibility for the accuracy of the information they publish. Neither the Scheme Operator nor the Scheme Owner shall have any responsibility whatsoever for costs, losses or direct or indirect damages or costs arising from inaccuracy of information or omissions in information published on the website on behalf of the HVA.
The blog page (herpes.org.uk/blog/) contains user-generated information and is excluded from the scope of certification.