What is it?
It amazes our new helpline volunteers how often a caller phones to describe their symptoms and get the helpliner to say what they have. We cannot do that. There are 24 ‘differential diagnoses’ that a sexual health doctor will be considering when s/he is shown what might be genital herpes.
We don’t list these on our website as we don’t want to encourage self-diagnosis. After all, they don’t give a medical student a link to a website and say ‘Now you can diagnose sexually shared conditions”!
Continue reading Helpline – what they ask
Marian’s interview with trainee journalist
Listen to the interview that Marian gave to a student of journalism.
Continue reading Herpes and sex education – an interview
We need to protect sexual health services
Sign the petition to maintain the sexual health services. Since the government REMOVED sexual health from the NHS and asked local councils to provide it, the standard of services (access times, staffing, etc) has gone down.
You need to show that members of the public do want the provision of anonymous, easily accessible sexual health clinics. Sign now!
We have been following the development of Theravax from Rational Vaccines. This is the work of Dr Bill Halford’s team. (I recently spoke to their business manager on the phone.) This is an interesting vaccine, because it is different from the others currently being worked on and it is more like the successful chickenpox vaccine.
Continue reading Potential vaccine?
We run these days to help you develop confidence, information, skills – and to meet others in the same boat.
Nine people attended recently. They marked their score cards with the top rating: a ‘very helpful’ day and several commented that it was even more enjoyable than they had expected. “Meeting the others on the course is a bonus,” said one lady. “In fact I have made two new friends and we support each other and meet up.” These days happen every three months.
Continue reading ‘Talking to a New Partner’ – Come to an Event That Will Give You Confidence (and Information)
If you get cold sores, you might like to try the new cold sores treatment with melissa. The researcher is keen to have more people to try this new, improved formula – and report back to him. A man who tested an earlier formula is totally thrilled at the results: much better than anything else he’s tried, and he’s tried a lot of different products!
You may have read some headlines in the Sun or the Mail, etc. They report “‘Women infected with herpes while they are pregnant are twice as likely to have a child with autism.” This headline comes from a study looking at whether maternal infections during pregnancy are associated with the risk of neurological developmental disorders such as autism spectrum disorders (ASDs).
Continue reading No “Link between herpes in pregnancy and autism”
“Dates for the diary” now has its own page
Go to Events
We organise a support groups/social get-togethers – mostly in London. The hosts for these events are people with herpes. You can meet others with the virus, share experiences…
We hold informal, interactive days when you can learn how to talk to a new partner. These events – next one on Saturday, 17 February, 2018 – are extremely popular. The usual comment from people who attend is always something like: “I wish I had gone to one of these sooner…”
And a formal seminar – once a year – with a doctor who is expert in genital herpes. We always ask the doctor to be sure to allow time for answering all your questions. Next one is on May 12th, 2018.
We need a volunteer (or more than one) to come into the office to do the routine tasks of administration. (We had a great guy, but we found him a full-time paid job in this building, so now we need ‘you’!)
Continue reading Volunteering